Genomic resource centre

CFA directory of resources


Patient support groups

  • Children's Craniofacial Association (CCA)
    Children's Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas. It is dedicated to improving the quality of life for people with facial differences and their families.
  • Cleft Lip and Palate Association (CLAPA)
    CLAPA is the only UK-wide voluntary organisation specifically helping those with, and affected by, cleft lip and palate. this site provides a general overview of cleft lip and cleft palate as well as information on services and advise offered by CLAPA.
  • Cleft resources online
    Provides links to cleft lip and cleft palate associations in Australia, Ireland, New Zeland, USA and UK.
  • DisabilityResources.org
    Provides links to online resources for patients, parents, families interested in cleft lip and cleft palate.
  • Genetic alliance online directory of genetic resources
    Provides genetic disease information searchable by genetic condition, organization and offered services.
  • KUMC Genetic Counseling Resources
    Lists genetic counselling resources including information by genetic counsellors for patients and individuals with genetic disorders.
  • Medical Resources.org
    Provides links to disease resources and references.
  • Wide smiles: Cleft lip and cleft palate resource
    Wide smiles is a US based patient support group that works to offer support, inspiration, information and networking for families everywhere who may be dealing with the challenges associated with clefting.
  • World Craniofacial Foundation
    The World Craniofacial Foundation, a nonprofit corporation, is dedicated to helping children obtain the life-changing craniofacial surgery they deserve.
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