CFA directory of resources
Patient support groups
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Children's Craniofacial Association (CCA)
Children's Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas. It is dedicated to improving the quality of life for people with facial differences and their families. -
Cleft Lip and Palate Association (CLAPA)
CLAPA is the only UK-wide voluntary organisation specifically helping those with, and affected by, cleft lip and palate. this site provides a general overview of cleft lip and cleft palate as well as information on services and advise offered by CLAPA. -
Cleft resources online
Provides links to cleft lip and cleft palate associations in Australia, Ireland, New Zeland, USA and UK. -
DisabilityResources.org
Provides links to online resources for patients, parents, families interested in cleft lip and cleft palate. -
Genetic alliance online directory of genetic resources
Provides genetic disease information searchable by genetic condition, organization and offered services. -
KUMC Genetic Counseling Resources
Lists genetic counselling resources including information by genetic counsellors for patients and individuals with genetic disorders. -
Medical Resources.org
Provides links to disease resources and references. -
Wide smiles: Cleft lip and cleft palate resource
Wide smiles is a US based patient support group that works to offer support, inspiration, information and networking for families everywhere who may be dealing with the challenges associated with clefting. -
World Craniofacial Foundation
The World Craniofacial Foundation, a nonprofit corporation, is dedicated to helping children obtain the life-changing craniofacial surgery they deserve.