Genomic resource centre

CFA directory of resources

Patient support groups

  • Children's Craniofacial Association (CCA)
    Children's Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas. It is dedicated to improving the quality of life for people with facial differences and their families.
  • Cleft Lip and Palate Association (CLAPA)
    CLAPA is the only UK-wide voluntary organisation specifically helping those with, and affected by, cleft lip and palate. this site provides a general overview of cleft lip and cleft palate as well as information on services and advise offered by CLAPA.
  • Cleft resources online
    Provides links to cleft lip and cleft palate associations in Australia, Ireland, New Zeland, USA and UK.
    Provides links to online resources for patients, parents, families interested in cleft lip and cleft palate.
  • Genetic alliance online directory of genetic resources
    Provides genetic disease information searchable by genetic condition, organization and offered services.
  • KUMC Genetic Counseling Resources
    Lists genetic counselling resources including information by genetic counsellors for patients and individuals with genetic disorders.
  • Medical
    Provides links to disease resources and references.
  • Wide smiles: Cleft lip and cleft palate resource
    Wide smiles is a US based patient support group that works to offer support, inspiration, information and networking for families everywhere who may be dealing with the challenges associated with clefting.
  • World Craniofacial Foundation
    The World Craniofacial Foundation, a nonprofit corporation, is dedicated to helping children obtain the life-changing craniofacial surgery they deserve.