Genomic resource centre

CFA directory of resources

Organizations & institutes

  • American Cleft Palate-Craniofacial Association (ACPA)
    ACPA is an international society of medical professionals with the goal of optimizing the interdisciplinary care of individuals affected by cleft lip, cleft palate, and other craniofacial anomalies.
  • The Association of Plastic Surgeons of India (APSI)
    The association of Plastic Surgeons of India, is a body of reconstructive surgeons. They are involved in the correction of deformities and restoration of form and function. The association is involved in propagation of the speciality, removing myths about this discipline, protection of the interests of the clientele and of its members.
  • Cleft Palate Foundation (CPF)
    CPF provides information to patients & families about cleft lip, cleft palate and other craniofacial differences and makes referrals to cleft/craniofacial treatment teams in their region. Its mission is to enhance the quality of life for individuals affected by facial birth defects.
  • European Collaboration on Craniofacial Anomalies (EUROCRAN)
    EUROCRAN project will run for four years between 2000 and 2004 to bring together researchers from a range of clinical/scientific disciplines with the shared aim of improving the management and understanding of craniofacial anomalies (CFA).
  • European Science Foundation (ESF)
    ESF acts as a catalyst for the development of science by bringing together leading scientists and funding agencies to debate, plan and implement pan-European initiatives. It promotes high quality science at a European level.
  • European Survelliance of Congenital Anomalies (EUROCAT)
    EUROCAT is the European network of population-based registries for the epidemiologic surveillance of congenital anomalies which aims to provide epidemiologic information. It also aims to help in setting up of registries and providing a collaborative network and infrastructure for research.
  • Hospital for the Rehabilitation of Craniofacial Anomalies (CENTRINHO)
    The Hospital for the Rehabilitation of Craniofacial Anomalies of the University of São Paulo - HRAC/USP, located in Bauru, Brazil, has been the destination of thousands of persons with cleft lip and palate and other craniofacial anomalies who come from the most remote regions of Brazil in search of specialized treatment. The Hospital is an autonomous unit of the University of São Paulo founded in 1967 as a research center linked to the Dental School of Bauru, and for this reason is known in Brazil as Centrinho, which means ‘Little Center’. This name is not justified by its current physical structure and even less so by the volume of cleft patients attended, which, nowadays, exceeds 1800 new cases per year.
  • Institute of Human Genetics (IHG)
    The Institute of Human Genetics (IHG) is the largest provider of genetic services in the Philippines today. It has a staff of around 30 professionals from various backgrounds - geneticists, doctors, nurses, medical technologists, biochemists, and biologists - all working together to bring modern medicine closer to the Filipino people.
  • International Center of Birth Defects (ICBD)
    ICBD is a non governmental organization of the International Clearinghouse for Birth Defects Monitoring Systems. It collaborates with public health institutions, epidemiologic organizations, parents support groups and associations to help the patients worldwide.
  • International Society of Craniofacial Surgery (ISCFS)
    The ISCFS provides a forum for surgeons to exchange information and technology, fostering a worldwide community of leading experts in this highly specialized field of medicine.
  • Khonkaen University Cleft Palate Craniofacial Center
    The Cleft Center is one of the leading Cleft Centers in Asia and is committed to work in education, research, and providing of standard care of cleft patients with the continuous quality improvement, most suitable to the local environment, with good team collaboration and a learning environment.
  • The Smile Train
    The Smile Train, is an international children's charity dedicated to helping the millions of children in the world who suffer from cleft lip and palate and also empowers local surgeons and medical professionals in developing countries to perform the surgery themselves.