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Ethical, legal and social implications (ELSI) of human genomics
The Human Genome Project and related initiatives, have introduced powerful new methods to the study of genes. Genomics has laid the foundations for a new approaches to the diagnosis and treatment of human disease, and introduced new possibilities for reproductive choices. This progress is accompanied by important ethical and social issues. Although many of these issues are not unique to genomics (such as confidentiality, informed consent, discrimination and stigmatisation, etc.), they require focused consideration in the context of genomics. Genomics is special in that gene-based approaches introduce a new language of “probability” and “susceptibility” to medical care, and furnish information about disorders; that often is of great interest to third parties – be they families, governments, insurance companies, law enforcement or scientific researchers.
This section highlights the key ethical concerns of human genomics and gives access to data about existing international regulations in genetics in relation to topics like pharmacogenomics and gene therapy among others. You also have access to ethicists on the GRC expert panel that can provide more specific answers to your concerns on the subject.
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HGN PRIORITIES FOR ELSI OF HUMAN GENOMICS
Provides a brief introduction to HGN's activities in ELSI issues specific to genetic testing and screening, genetic patents, and
pharmacogenomics.
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ELSI GENETICS REGULATION DIRECTORY (ELSI RED)
ELSI ReD is a directory of national and international regulations on genetic testing and screening, genetic patents, genetic databanks, gene therapy and pharmacogenomics.
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QUALITY AND SAFETY IN GENETIC TESTING
Provides an indepth exploration of quality assurance and patient safety in the context of genetic testing.
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WHO ACHR RECOMMENDATIONS ON ELSI OF HUMAN GENOMICS
Includes recommendations by WHO Advisory Committee on Health Research (ACHR) in the area of ELSI in human genetics.
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ASK THE EXPERT
Includes an active panel of experts chosen by WHO to answer your queries on genetics and health issues.
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ONLINE RESOURCES ON ELSI OF HUMAN GENOMICS
Provides links to ELSI organizations and useful reading on the subject.
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