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Useful online resources on ELSI of human genomics

Ethics organisations

• Strategic Initiative for Developing Capacity in Ethical Review (SIDCER)
  The Strategic Initiative for Developing Capacity in Ethical Review (SIDCER) is a network of independently established regional fora for ethical review committees, health researchers and invited partner organizations with an interest in the development of ethical review. The regional fora are composed of Asia and Western Pacific (FERCAP), former Russian states (FECCIS), Latin America (FLACEIS), Africa (PABIN) and North America (FOCUS). SIDCER formally began through the formation of these fora
• Joint Centre for Bioethics, University of Toronto (Canada)
  The JCB studies important ethical, health-related topics through research and clinical activities. The JCB is a network of over 160 multidisciplinary professionals seeking to improve health care standards at both national and international levels.
• Humgen (Canada)
  The University of Montreal “Humgen” website gives policy makers and lay people alike access to a comprehensive database on the legal, ethical and social aspects of human genetics. The purpose of this web site is to connect visitors of this site to credible and readily accessible policy information on human genetics
• UNESCO IBC (France)
  UNESCO’s Programme on the Ethics of Science and Technology reflects its concern for the ethical issues raised by scientific progess today. The organization aims to place such progress in a context of ethical reflection rooted in the cultural, legal, philosophical and religious heritage of the various human communities. Created in 1993 UNESCO's Bioethics Programme addresses the ethical, legal and social concerns stemming from advances in the life sciences, particularly in genetics.
• The Third World Network (TWN) (Malaysia)
  The Third World Network is an independent non-profit international network of organizations and individuals involved in issues relating to development, the Third World and North- South issues.
• Eubios Ethics Institute (Japan)
  The Eubios Ethics Institute is a nonprofit group that aims to stimulate the international discussion of ethical issues, and how we may use technology in ways consistent with "good life" (eu-bios). It aims at an integrated and cross-cultural approach to bioethics, and at building up an international network. The Eubios Ethics Institute was founded by Darryl Macer in 1990, in Christchurch, New Zealand and in Tsukuba Science City, Japan.
• Eubios Journal of Asian and International Bioethics (EJAIB)
  EJAIB is the official journal of the Asian Bioethics Association (ABA) and the International Union of Biological Sciences (IUBS) Bioethics Program.
• The National Human Genome Institute (USA)
  The National Human Genome Research Institute's (NHGRI) Ethical, Legal and Social Implications (ELSI) Program was established in 1990 as an integral part of the Human Genome Project (HGP) to foster basic and applied research, and support education and outreach.
• Nuffield Council on Bioethics (United Kingdom)
  The Nuffield Council on Bioethics is an independent body established by the Trustees of the Nuffield Foundation in 1991 to consider the ethical issues arising from developments in medicine and biology. The Council is funded jointly by the Nuffield Foundation, The Wellcome Trust and the Medical Research Council.
• Wellcome Trust (United Kingdom)
  The Wellcome Trust programme in Biomedical Ethics aims to provide evidence and thinking to inform decision making, public debate and public policy making.
• Bioethics, Council of Europe
  Founded in 1949, Council of Europe's aim in the field of bioethics is to protect the individual's dignity and fundamental rights with regard to the application of ordinary medicine and new medical techniques (genetics, medically assisted procreation, etc.).