Websites: genetics legislation and policy
-
Genetic Discrimination Legislation Resources, Genetic Alliance
Provides links to passed and pending bills and legislation related to genetic discrimination in USA. -
Genetic Privacy Act and Commentary, Boston University School of Public Health (USA)
This draft bill was written in 1995 by George Annas to assist policy makers and legislators. Proposes that access to information in genetic data banks should be regulated during sample collection, storage, disclosure, and use. Provides introduction to, contents of, and commentary for the Genetics Privacy Act. -
Genetics laws and legislative activity, National Council of State Legislatures (USA)
Provides links to U.S State Genetic Laws and ongoing legislative activity in areas of embryonic and fetal research, employment, genetic counselor licensing, health insurance, health insurance enforcement, human cloning, insurance, newborn screening, privacy, use/storage/disposition of frozen embryos. -
Policy Briefs: Current Genetics Issues of the Day, National Council of State Legislatures (USA)
To encourage information exchange between state legislators, health officials and governors' offices on genetics policy issues. -
Genetics privacy and legislation, US Department of Energy
This site offers up-to-date legislative activity in the U.S regarding genetics and issues of privacy, confidentiality and non-discrimination. -
GEMdatabase
The Genetic Education Materials (GEM) Database is a searchable listing of public health genetics policy documents and clinical genetics educational materials. It is a project of the National Newborn Screening and Genetics Resource Center (NNSGRC) USA.