Resources for patients and the public

Genomic interventions have the potential to make a significant impact on health care in the future. WHO underscores the importance of public involvement in the improved application of genetic technologies for the prevention and management of disease. It is vital that the public be well prepared for the many new innovations and challenges that are emerging in the field of genomics.

There is a need for open and easy public access to health resources, including the knowledge of the types of human diseases and methods to prevent and manage them. Misinformation or a lack of information can mar public perception of both the fundamental concepts and the implications of genomics. An informed public can influence policy makers in the development of guidelines and frameworks that address the ethical, social and legal issues raised by expanding genomic technologies. WHO encourages its Member States to raise public awareness of genomics, incorporate public dialogue into legislative action and eventually foster a responsive and effective health policy framework.

This section includes a basic introduction to genetic diseases, information on existing patient support groups, genetic counselling facilities, patients' rights along with other general online resources on genomics.