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Palliative Care:
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Human Resources, Infrastructure and Supplies Needed

Trained family members, community volunteers or health care workers will be required in sufficient numbers to provide adequate care without overburdening individual carers. Ideally a mix of all three will be used, with hospital or clinic based health care workers used for initial teaching and periodic follow-up in the home. Palliative care should be included in the curriculum of medical, nursing and other health professional students to ensure that health care workers are sufficiently prepared to care for PLWHA in all settings, and are able to train family members and community volunteers.

As noted above, palliative care will necessitate policies and guidelines being in place at the institutional level to ensure that family and community members are trained to care for PLWHA. Regulations regarding the use of morphine need to be revised as some regulations requiring a doctor’s prescription constitute obstacles to access to these painkillers in settings where there are not enough doctors. Subsequent to guidelines being established, basic medications and supplies can be provided in the hospital, clinic or home settings. Procurement, storage and distribution will be integral to any programme seeking to provide palliative care.

Cost Information

The cost of providing palliative care will depend on a number of factors: chiefly, the supplies and medications made available and the involvement of trained health workers in home visits. Palliative care, which relies on community volunteers, will be far less costly. Average cost for medications per patient-year for palliative care has been estimated to be approximately US$ 19 in both Sub-Saharan Africa and South East Asia. In an analysis of the cost of eight home-based care programmes in Zambia it was found that community-initiated care was both more effective and less costly, with six months of care averaging US$ 26. In some settings in Uganda where the full use of the analgesic ladder is employed, costs have averaged US$ 7 per week. While the initial cost of using home based cared for PLWHA may seem high, this cost should be measured against savings at the hospital or clinic – as well as the overall impact on the family and community in terms of education, reduction in stigma and discrimination, etc. Whether provided in the home, clinic or hospital, palliative care need not be unduly costly if human resources and basic medications and supplies are used appropriately.

Key References

  1. Fact sheets on HIV/AIDS for nurses and midwives. WHO/EIP/OSD/2000.5.

  2. AIDS Palliative Care. UNAIDS Technical Update, October 2000.

  3. Cancer pain relief, 2nd Edition. WHO, 1996.

  4. Symptom relief in terminal illness. WHO, 1998.

  5. Caring for carers, managing stress in those who care for PLWHA. UNAIDS case study, 2000.

  6. AIDS Home Care Handbook. WHO/GPA/IDS/HCS/P3.2.

  7. Home-based and long-term care, annotated bibliography. WHO/HSC/LTH/99.1.

  8. Home-based long-term care. WHO TRS 898. WHO 2000.

  9. Suggested essential WHO drug list for palliative care: consultation on HIV patients with cancer: December 2000.

  10. Clinical AIDS Care Guidelines for Resource-poor Settings, MSF, Belgium-Luxembourg, March 2001.

  11. Confronting AIDS: Public Priorities in a Global Epidemic. Oxford University Press for the World Bank, 1997

Palliative Care:
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