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Global Campaign against Epilepsy: Out of the Shadows

The campaign at a glance [pdf 252kb]

Mission statement:

To improve acceptability, treatment, services and prevention of epilepsy worldwide

Established in 1997 as a joint project of the:

  • World Health Organization (WHO)
  • International League Against Epilepsy (ILAE)
  • International Bureau for Epilepsy (IBE)
IBE perspective of the Global Campaign [pdf 14kb]

Objectives:

  • increase public and professional awareness of epilepsy as a universal, treatable brain disorders;
  • raise epilepsy to a new plane of acceptability in the public domain;
  • promote public and professional education about epilepsy;
  • identify the needs of people with epilepsy on a national and regional basis;
  • encourage governments and departments of health to address the needs of people with epilepsy including awareness, education, diagnosis, treatment, care, services, and prevention.

Campaign strategy:

Working along two parallel tracks, the Campaign will:

  • raise general awareness and understanding of epilepsy;
  • support Departments of Health in identifying needs and promoting education, training, treatment, services, research and prevention in their countries.

Campaign tactics:

  • to generate Regional Declarations on Epilepsy, produce information on epilepsy for policy-makers, incorporate epilepsy care into National Health Plans, and facilitate the establishment of national organizations of professionals and lay persons who are dedicated to promoting the well-being of people with epilepsy;
  • to help organize Demonstration Projects that illustrate good practice in the provision of epilepsy care.

Campaign activities:

:: REGIONAL DECLARATIONS:

:: REGIONAL REPORTS:

:: DEMONSTRATION PROJECTS:

:: ANNUAL REPORTS AND OTHER PUBLICATIONS

Atlas: Epilepsy care in the world 2005

Atlas: Epilepsy care in the world 2005 [pdf 8.18Mb]
Full text

To facilitate retrieval, the Atlas has been divided into individual chapters here below:

Epilepsy atlas - Front pages [pdf 511kb]
Acknowledgements, preface, executive summary, introduction, methodology
Epilepsy: the disorder [pdf 1.01Mb]
Milestones in the history of epilepsy, number of people with epilepsy, epidemiology, aetiology of epilepsy - reported frequency, aetiology and risk factors
Epilepsy: the services - part 1 [pdf 1.32Mb]
Diagnostic services, primary care, provision of care, inpatient care, epilepsy specialist services
Epilepsy: the services - part 2 [pdf 774kb]
Antiepileptic drugs, the treatment gap, sub-specialized services, epilepsy surgery
Epilepsy: the care providers - part 1 [pdf 1.08Mb]
Medical professionals, professionals allied to medicine, training in epileptology, education in epileptology
Epilepsy: the care providers - part 2 [pdf 1.57Mb]
Professional organizations, lay associations, role of ILAE in fostering epilepsy care, role of IBE in providing epilepsy care
Epilepsy: the public health aspects - part 1 [pdf 828kb]
Budget and financing, disability benefits, epilepsy and rights, reporting and data collection
Epilepsy: the public health aspects - part 2 [pdf 632kb]
Problems encountered, stigma and social issues, the attributable and advertable burden of epilepsy, Global Campaign Against Epilepsy
Glossary, references, respondents [pdf 385kb]

Developing approaches to reducing stigma of epilepsy:

:: The CREST Study [pdf 275kb]

:: CREST News Update [pdf 100kb]