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printable version
Global Campaign against Epilepsy: Out of the Shadows
Mission statement:
To improve acceptability, treatment, services and prevention of epilepsy worldwide
Established in 1997 as a joint project of the:
- World Health Organization (WHO)
- International League Against Epilepsy (ILAE)
- International Bureau for Epilepsy (IBE)
IBE perspective of the Global Campaign [pdf 14kb]
Objectives:
- increase public and professional awareness of epilepsy as a universal, treatable brain disorders;
- raise epilepsy to a new plane of acceptability in the public domain;
- promote public and professional education about epilepsy;
- identify the needs of people with epilepsy on a national and regional basis;
- encourage governments and departments of health to address the needs of people with epilepsy including awareness, education, diagnosis, treatment, care, services, and prevention.
Campaign strategy:
Working along two parallel tracks, the Campaign will:
- raise general awareness and understanding of epilepsy;
- support Departments of Health in identifying needs and promoting education, training, treatment, services, research and prevention in their countries.
Campaign tactics:
- to generate Regional Declarations on Epilepsy, produce information on epilepsy for policy-makers, incorporate epilepsy care into National Health Plans, and facilitate the establishment of national organizations of professionals and lay persons who are dedicated to promoting the well-being of people with epilepsy;
- to help organize Demonstration Projects that illustrate good practice in the provision of epilepsy care.
Campaign activities:
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REGIONAL DECLARATIONS:
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REGIONAL REPORTS:
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DEMONSTRATION PROJECTS:
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ANNUAL REPORTS AND OTHER PUBLICATIONS
Atlas: Epilepsy care in the world 2005
Atlas: Epilepsy care in the world 2005 [pdf 8.18Mb]
Full text
To facilitate retrieval, the Atlas has been divided into individual chapters here below:
Epilepsy atlas - Front pages [pdf 511kb]
Acknowledgements, preface, executive summary, introduction, methodology
Epilepsy: the disorder [pdf 1.01Mb]
Milestones in the history of epilepsy, number of people with epilepsy, epidemiology, aetiology of epilepsy - reported frequency, aetiology and risk factors
Epilepsy: the services - part 1 [pdf 1.32Mb]
Diagnostic services, primary care, provision of care, inpatient care, epilepsy specialist services
Epilepsy: the services - part 2 [pdf 774kb]
Antiepileptic drugs, the treatment gap, sub-specialized services, epilepsy surgery
Epilepsy: the care providers - part 1 [pdf 1.08Mb]
Medical professionals, professionals allied to medicine, training in epileptology, education in epileptology
Epilepsy: the care providers - part 2 [pdf 1.57Mb]
Professional organizations, lay associations, role of ILAE in fostering epilepsy care, role of IBE in providing epilepsy care
Epilepsy: the public health aspects - part 1 [pdf 828kb]
Budget and financing, disability benefits, epilepsy and rights, reporting and data collection
Epilepsy: the public health aspects - part 2 [pdf 632kb]
Problems encountered, stigma and social issues, the attributable and advertable burden of epilepsy, Global Campaign Against Epilepsy
Glossary, references, respondents [pdf 385kb]
Developing approaches to reducing stigma of epilepsy:
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The CREST Study [pdf 275kb]
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CREST News Update [pdf 100kb]
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