Global Campaign against Epilepsy: Out of the Shadows
Mission statement:
To improve acceptability, treatment, services and prevention of epilepsy worldwide
Established in 1997 as a joint project of the:
- World Health Organization (WHO)
- International League Against Epilepsy (ILAE)
- International Bureau for Epilepsy (IBE)
Objectives:
- increase public and professional awareness of epilepsy as a universal, treatable brain disorders;
- raise epilepsy to a new plane of acceptability in the public domain;
- promote public and professional education about epilepsy;
- identify the needs of people with epilepsy on a national and regional basis;
- encourage governments and departments of health to address the needs of people with epilepsy including awareness, education, diagnosis, treatment, care, services, and prevention.
Campaign strategy:
Working along two parallel tracks, the Campaign will:
- raise general awareness and understanding of epilepsy;
- support Departments of Health in identifying needs and promoting education, training, treatment, services, research and prevention in their countries.
Campaign tactics:
- to generate Regional Declarations on Epilepsy, produce information on epilepsy for policy-makers, incorporate epilepsy care into National Health Plans, and facilitate the establishment of national organizations of professionals and lay persons who are dedicated to promoting the well-being of people with epilepsy;
- to help organize Demonstration Projects that illustrate good practice in the provision of epilepsy care.
Campaign activities:
- REGIONAL DECLARATIONS:
- REGIONAL REPORTS:
- DEMONSTRATION PROJECTS:
- ANNUAL REPORTS AND OTHER PUBLICATIONS
Atlas: Epilepsy care in the world 2005
To facilitate retrieval, the Atlas has been divided into individual chapters here below:
-
Epilepsy atlas - Front pages
pdf, 511kb
Acknowledgements, preface, executive summary, introduction, methodology -
Epilepsy: the disorder
pdf, 1.01Mb
Milestones in the history of epilepsy, number of people with epilepsy, epidemiology, aetiology of epilepsy - reported frequency, aetiology and risk factors -
Epilepsy: the services - part 1
pdf, 1.32Mb
Diagnostic services, primary care, provision of care, inpatient care, epilepsy specialist services -
Epilepsy: the services - part 2
pdf, 774kb
Antiepileptic drugs, the treatment gap, sub-specialized services, epilepsy surgery -
Epilepsy: the care providers - part 1
pdf, 1.08Mb
Medical professionals, professionals allied to medicine, training in epileptology, education in epileptology -
Epilepsy: the care providers - part 2
pdf, 1.57Mb
Professional organizations, lay associations, role of ILAE in fostering epilepsy care, role of IBE in providing epilepsy care -
Epilepsy: the public health aspects - part 1
pdf, 828kb
Budget and financing, disability benefits, epilepsy and rights, reporting and data collection -
Epilepsy: the public health aspects - part 2
pdf, 632kb
Problems encountered, stigma and social issues, the attributable and advertable burden of epilepsy, Global Campaign Against Epilepsy -
Glossary, references, respondents
pdf, 385kb
