Sickle Cell Carers Awareness Network (SCCAN)

Sickle Cell Carers Awareness Network (SCCAN) is a non profit making, non governmental organisation that was started in Jaiama Nimikor in the Kono District in January 2008.

Member profile

Sickle Cell Carers Awareness Network (SCCAN) is a non profit making, non governmental organisation that was started in Jaiama Nimikor in the Kono District in January 2008.

The aim was to raise awareness about sickle cell, its treatment and prevention as well as providing practical support and care to people who care for people living with sickle cell and their carers.

Main activities

our main activity is Promoting Sickle Cell Awareness and supporting people living with sickle cell and their carers. We run a weekly sickle cell clinic; school visits and community outreach are among our daily activities. We aim to increase awareness of Sickle cell and educate sufferers, their carers and communities in Tonkololi District to minimise fatality as more people are made aware of the illness, and how it can be reduced or managed and treated. We aim to establish a continuing community based Respite Centre in that district that will attend to sickle cell suffers; respecting their dignity and their human rights is key to making a lasting impact in the district.

Links to the health workforce crisis

On the 19th of June 2011 SCCAN Commemorated World sickle cell day at the Koidu Government Hospital in collaboration with staff and management of the hospital. A workshop was held with information dissemination as a theme. Water was distributed to clients and carers.

On the 18th of July 2011 SCCAN commenced a medical mobile clinic with 44 volunteers in the Kono district which lasted for two weeks. During this period, SCCAN was able to influenced established organisations like the World Vision S/L. Jaiama UMC Hospital, the Sierra Leone school of Medicine, the Koidu Government Hospital, the National school of Nursing and the Ministry of Health and Sanitation to collaborate with SCCAN to conduct mobile clinic in the Jaiama Nimikor chiefdom in the Kono district. SCCAN was able to screen 3,194 people for the sickle cell gene during this campaign.

SCCAN visited the Bo district on the 4th of August 2011 and had radio discussions with stakeholders to raise awareness in the district. SCCAN in collaboration with World Vision ADP visited Jimmi Bagbo /Lugbu to bring awareness of sickle cell anaemia to the communities. SCCAN also visited the Holy Spirit Hospital in Makeni. During this visit arrangements were made for the hospital to treat sickle patient free of charge. Sickle cell patients are now been treated free of charge.

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