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Engaging affected communities and civil society to end TB

The engagement of communities and civil society is essential to end tuberculosis (TB). It aims to strengthen collaboration and leverage capacities of communities and civil society. The World Health Organization (WHO) End TB Strategy highlights the importance of community and civil society engagement in the response to TB. Similarly, the political declarations of the 2018 and 2023 United Nations (UN) high-level meetings on the fight against TB called for strong engagement of affected communities and civil society in national, regional and global efforts to end TB.

WHO Guidance on engagement of communities and civil society to end tuberculosis emphasizes the involvement of communities in the full programmatic cycle of the TB response, including planning, decision-making, advocacy for sustainable and equitable financing, implementation, monitoring and research. It stresses the importance of close engagement and strong, sustainable partnerships between ministries of health, and civil society and communities affected by TB, for the delivery of people-centred services, building on the concept of “one system” aligned with the vision of health systems that are oriented towards primary health care and that include communities as an integral component.

Through the WHO Civil Society Task Force on Tuberculosis (CSTF-TB), an advisory body, WHO nurtures a powerful collaboration mechanism to mainstream civil society and affected communities’ voices into decision making, policy, programmes and activities at global, regional and country levels. Established in December 2018, the CSTF-TB has a diverse membership selected through an independent selection panel. The group is at the forefront of coordinated stakeholder efforts to formalize mechanisms of civil society engagement in multisectoral action, amplify voices of TB survivors, advocate for increases in domestic funding, sharpen focus on the vulnerable populations, engage in TB research, and identifying social, legal and gender barriers to care and defining solutions.

16% of

TB notifications

are attributed to community referrals, among the countries that reported data in 2024.

Global TB Report

91% of treatment

success rate

for people who benefited from community treatment support in countries that report data in 2024.

90% of

30 HBCs

reported that there was formal engagement of communities in the development of the NSP.

Only 2.1%

of total TB budget

in countries that reported data in 2024 was committed for community engagement.

Publications

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WHO Civil Society Task Force on tuberculosis: engagement with civil society as a driver for change: progress report 2022-2023

The WHO Civil Society Task Force on Tuberculosis (CSTF-TB) Progress Report highlights the significant achievements, lessons learned, and challenges faced...

Case studies on engagement of communities and civil society to end tuberculosis

The sixteen case studies aim to illustrate the essential role of community and civil society engagement in global efforts to end tuberculosis (TB). These...

Guidance on engagement 
of communities and 
civil society to end 
tuberculosis

The importance of community and civil society engagement to end TB has been highlighted in various strategies and global commitments. The WHO End TB Strategy,...

WHO Civil Society Task Force on TB: engagement with civil society as a driver for change: progress report

The WHO Civil Society Task Force on TB is a platform for discussion and exchange with WHO with emphasis on harnessing the untapped potential in engagement...

WHO Civil Society Task Force on TB: engagement with civil society as the driver for change

This Progress Review document highlights key achievements of the WHO Civil Society Task Force on TB since its establishment in late 2018. The Task Force...

Community-based health care, including outreach and campaigns, in the context of the COVID-19 pandemic

Community-based health care is an essential part of primary care at all times; in the context of the COVID-19 pandemic, the distinct capacity of trusted...

Baseline assessment of community based TB services in 8 WHO ENGAGE-TB priority countries

This document contains a series of desk reviews for the eight ENGAGE-TB priority countries supported by the Global Fund (DRC, Kenya, Indonesia, Mozambique,...

Empowering communities to end TB with the ENGAGE-TB approach

Community engagement is critical to improve the reach and sustainability of interventions related to tuberculosis (TB) and to help end TB. In 2012, the...

Statement of action to enhance the engagement of communities, non-governmental and other civil society organisations in the implementation of the end TB strategy: outcome of a WHO consultation meeting, November 11-13, 2015, Addis Ababa, Ethiopia

The Statement of Action is the product of a preceding WHO TB Consultation held in Addis Ababa on 11-13 November 2015. The consultation brought together...

ENGAGE-TB: integrating community-based tuberculosis activities into the work of nongovernmental and other civil society organizations: training of community health workers and community volunteers: facilitators’ guide

This guide is designed to assist facilitators in training CHWs and CVs in integrating community-based TB services into their work. The training will help...

Curriculum and facilitator's guide for training in the engage-TB approach (‎integrating community-based TB activities into the work of NGOs and other CSOs)‎: training manual

This training curriculum and facilitators’ guide was developed based on the implementation manual and intended to help train staff of national tuberculosis...

Engage-TB: integrating community-based tuberculosis activities into the work of nongovernmental and other civil society organizations: implementation manual

This document has been developed to explain in more detail how the actions outlined in the Operational Guidance can be implemented.The manual has three...

Engage-TB: integrating community-based tuberculosis activities into the work of nongovernmental and other civil society organizations: operational guidance

The purpose of this document is to provide operational guidance to NGOs and other CSOs and NTPs or their equivalents in implementing and scaling-up integrated...

Community involvement in tuberculosis care and prevention : towards partnerships for health : guiding principles and recommendations based on a WHO review

The dignity and value of each person is the basis of rights and responsibilities that the society affi rms and accepts to make progress towards a common...

Joint Statements: WHO Director-General and the Civil Society Task Force on TB

Case studies

In 2018, out of 10 million people with tuberculosis (TB), 3 million did not have access to TB diagnosis or treatment and 1.5 million died of the disease. Community engagement, through the implementation of community-based TB services as an integral part of the health systems, provides an opportunity to increase health service coverage and find the missing people with TB, while ensuring that delivered care is safe, effective, efficient, equitable, and people centred.

This series of eight case studies from TB high burden countries illustrates challenges, best practices, lessons learned and future outlooks from programmes, interventions and initiatives in the planning and implementation of community-based TB activities. It is hoped that other countries or implementers will use the insights and evidence presented in this series to integrate or strengthen community TB services in their own response to the TB epidemic.

 

Indonesia has made great progress in expanding tuberculosis (TB) services over the last few years, but the decline in TB incidence has been slow and the...

Nigeria is among the eight countries that account for two thirds of the global tuberculosis (TB) burden. According to the World Health Organization (WHO)...

Tuberculosis (TB) is one of the main public health emergencies in United Republic of Tanzania, causing the death of 38 000 people in 2018. The World Health Organization...

The United Republic of Tanzania is one of the 30 countries with the highest burden of tuberculosis (TB) in the world. According to WHO, 142 000 people...

In the Democratic Republic of Congo (DRC), tuberculosis (TB) is a disease that is accompanied by a heavy socioeconomic and health burden. The DRC...

Tuberculosis (TB) remains a major public health issue and a leading cause of death in Mozambique. TB incidence rates have not improved in recent years...

Despite tremendous progress made in tuberculosis (TB) control efforts in Myanmar over the past three decades, with TB prevalence declining from 894 cases...

Pakistan is one of the eight countries that account for two-thirds of the global tuberculosis (TB) burden. The country accounts for 6% of the total number...