Webinar: Introduction to ICTRP

26 June 2019 13:00 – 14:00 UTC Time

The first ICTRP webinar was on 26 June 2019 (Introduction to ICTRP).

The content was mainly about What is ICTRP? and a brief description of the Registry Network and the Search Portal.

Future webinars

  • ICTRP Standards
    Detailed ICTRP standards such as criteria for being a primary registry in the ICTRP Network, and topics on governance and ethics.
  • ICTRP Search Portal and Web Service
    An overview of how to search the ICTRP database using different options of the search portal.
  • ICTRP Primary Registries
    Information on existing registries and data providers explaining the relationship between the registries and ICTRP. Guest speakers will be invited in the Webinar to talk about their registry.
  • ICTRP filters – Collaboration with Orphanet on Rare diseases filter
    Rare disease filter in the ICTRP database and the collaboration project between ICTRP and the Orphanet which is an organization specialised in Rare diseases.

 

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